Ehlers Danlos Syndrome
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Chronic Illness: What Sufferers Wish You Knew
As anyone who follows me on Facebook knows, yesterday was a terrible pain day for me. It’s always a tricky thing talking openly about it on social media because I know that people don’t know how to respond, and I get it. It’s not fun to talk about and, as a person with a healthy Continue reading
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Thoughts on motherhood and the new year ahead.
OK, so I can’t believe I’m about to say this but… wait for ittttt… I feel pretty darn good! 😱😬🫣😳 Why would I be scared to say that out loud, you ask? Well, as someone who’s lived most of their life under a cloud of self-doubt and depression I’m not entirely sure I know what Continue reading
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And sometimes you wear peas… Or, The Ups and Downs of Chronic Illness

Some days you learn to embody the phrase, “go with the flow”. Today was a very mixed bag and the flow came at me in waves. It started with an 8:30 AM appointment with my primary care physician. Before my next hip replacement surgery this December 19 I am required to have a clean bill Continue reading
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My Inaugural Post
11/26/2023 It’s closing in on 3 pm, Sunday afternoon. The usual choir director is still recuperating after breaking her femur about a month ago which means I directed Divine Liturgy this morning. My brain is mush at the moment because I’m still on the bronchitis struggle bus but every fiber of my being is focused Continue reading